AIDS Action Committee of Massachusetts - AIDS
Foundation of Chicago - AIDS Project Los Angeles - AIDS Services of Dallas -
AIDS Vaccine Advocacy Coalition - CAEAR Coalition - Columbus AIDS Task Force -
Gay Men’s Health Crisis – Lambda Legal Defense & Education Fund - National
AIDS Housing Coalition - National Association of People with AIDS - National
Minority AIDS Council - Project Inform - San Francisco AIDS Foundation -
Whitman-Walker Clinic
March 13, 2002
The Honorable George W. Bush
President of the United
States of America
The White House
1600 Pennsylvania Avenue,
N.W.
Washington, D.C. 20500
Dear Mr. President:
Each day, America is making
brave and demonstrable progress in the war on terrorism and on efforts to
improve the nation’s economy. However,
the war on HIV/AIDS is now entering its third decade. There are now more than 40 million people living with HIV/AIDS
worldwide and more than 21 million have died.
Our message is simple: We need your leadership to help end this
human suffering and death.
There are few other issues
facing our nation and the world that need your immediate attention and support,
and that of your Administration, more than that of ending the toll of
HIV/AIDS. As the Presidential Advisory
Council on HIV/AIDS holds its first meeting, and as Congressional hearings on
your proposed FY 2003 Budget get underway, we submit for your review the
attached assessment of your Administration’s record on HIV/AIDS to date.
We urge you to give priority
consideration to three items:
§
Your
strong commitment to increased funding for programs and services that provide
hope and health to people living with HIV/AIDS at home and abroad;
§
Rapid
progress on the appointments of health experts in critical positions that are
now vacant, especially those at the Centers for Disease Control and Prevention,
Food and Drug Administration, Health Resources and Services Administration, and
National Institutes of Health;
§
A
meeting between you, key officials in your Administration, and AIDS advocates
regarding the many issues relating to AIDS in the third decade.
It is our strong desire to
work with you and your Administration on these matters and others in the
struggle to end this epidemic.
Sincerely,
CAEAR
Coalition
Columbus
AIDS Task Force
National
AIDS Housing Coalition
National
Minority AIDS Council
Whitman-Walker
Clinic
Subject: AIDS
|
|
Funding |
Leadership |
Care |
D |
D |
|
Housing |
C |
|
|
Minority
HIV/AIDS Initiative |
D- |
D- |
|
Prevention |
D |
|
|
Research |
B+ |
D |
Global
|
C- |
C |
|
Executive
Office of the President |
N/A
|
D+ |
We
urge you to give priority consideration to three items immediately:
§
Your strong commitment to increased funding for
programs and services that provide hope and health to people living with
HIV/AIDS at home and abroad;
§
Rapid progress on the appointments of health
experts in critical positions that are now vacant, especially those at the
Centers for Disease Control and Prevention, Food and Drug Administration,
Health Resources Services Administration, and National Institutes of Health;
and
§
A meeting between you, key officials in your
Administration, and AIDS advocates regarding the many issues relating to AIDS
in the third decade.
The HIV/AIDS epidemic requires a
comprehensive, coordinated national strategy, adequate funding, and strong
leadership at the highest levels of government. Numerous factors – including toxic, complicated, and expensive
drug regimens; growing HIV and AIDS caseloads at home and abroad; and the lack
of widespread, frank prevention programs – require a greater national
commitment today than ever before.
The challenges faced by Americans – those
living with HIV/AIDS, and the millions more who are affected by this disease –
are opportunities for this Administration to build on our nation’s reputation
for leadership and resolve. As our nation invests in protecting our
borders from the threat of terrorist attacks, this Administration must commit
the same vigor, leadership and resources to protect Americans and other nations
of the world from the terrors of the AIDS epidemic.
Ř Care
With preliminary reports from the Centers for Disease Control and
Prevention (CDC) showing that the number of new AIDS cases increased in the
United States by 8 percent last year and medical inflation reaching 11 percent,
community-based AIDS service organizations around the country face significant
challenges in their efforts to increase access to comprehensive care with less
funding. When medical inflation is
taken into consideration, flat funding the Ryan White CARE Act programs, as
twice proposed by the Bush Administration, has the affect of reducing or
eliminating care and treatment to nearly 16,000 individuals currently receiving
care under this program. By not
increasing funding for the CARE Act, it is also estimated that 27,000 of the
40,000 individuals infected by HIV annually in the United States will not be
able to turn to federally-supported care.
The Administration’s budget provides no new funding for the AIDS Drug
Assistance Program (ADAP) while thousands of low-income persons living with HIV
are waiting to access life-prolonging drugs through ADAP. Despite the billions of dollars invested in
developing important AIDS drugs, escalating drug prices and no additional
federal investment will force states to deny access to these essential drugs.
With states facing serious shortfalls in their respective state Medicaid
budgets, the Administration has yet to show support for an increase in the federal
Medicaid contribution, forcing states to reduce coverage, services and
prescription benefits. This could
threaten the care and treatment of the 30 percent of persons living with
HIV/AIDS in the U.S. receiving essential medical services through Medicaid.
The Administration
has failed to show any leadership in modifying reforming
entitlement
programs, specifically Medicaid, to
ensure that those low-income individuals whose HIV
disease has not yet progressed to AIDS are eligible for the program so that
they can benefit from early treatment.
The Department of Health and Human Services has not led efforts to
expand services covered by Medicaid or worked with states to reach eligible
individuals and enroll them in Medicaid.
Ř
Housing
President Bush
has twice requested modest increases for the Housing Opportunities for People
with AIDS (HOPWA) program. The FY 2002 request allowed the Department of
Housing and Urban Development (HUD) to fund newly eligible localities without
major disruption to existing programs, but still leaves thousands of people
living with HIV/AIDS homeless or marginally housed.
The proposed 5
percent increase for HOPWA in FY 2003 is an improvement, however, the overall
HUD budget is flat- funded after accounting for renewal
of expiring Section 8 vouchers. Characterized as increases, the renewal funds
do not produce a single new slot for eligible individuals or families. The
budget also flat funds other key programs for low-income, homeless people with
HIV /AIDS, including Shelter Plus Care
and Section 811.
HUD Secretary Mel Martinez and Deputy
Secretary Roy Bernardi have publicly stated their support for expansion of
federal housing for underserved, disabled populations, including low-income
people with HIV/AIDS. Unfortunately, President Bush has largely ignored the
federal government’s responsibility to provide housing support for low-income,
marginally housed working families and homeless individuals, including many who
are living with HIV/AIDS.
An estimated 70 percent of all new HIV
infections are among African Americans and Latinos, though they comprise only
31 percent of the U.S. population,. Yet, for two
consecutive years President Bush has requested no new funds for the Minority
HIV/AIDS Initiative (MHAI). Officials
at the Department of Health and Human Services (HHS) have undermined this
critical initiative by failing to follow “congressional intent” and AIDS community
efforts to target MHAI resources to indigenous, minority, community-based
organizations within communities of color. As HIV infections and new
AIDS cases are increasingly devastate communities
of color in the United States, Presidential inaction on the domestic HIV/AIDS
state of emergency in communities of color is unconscionable.
Despite promising statements from HHS
Secretary Tommy Thompson about the Administration’s commitment to eliminating
health disparities and improving health access for people of color, he has not
followed up that rhetoric with action. Despite President
Bush has done nothing substantive to support the MHAI. Indeed, the President
himself has yet to publicly acknowledge the AIDS crisis in communities of
color, which continues to disproportionately impact women, and
gay men and youth.
While the CDC has set a goal of reducing HIV
infections by 50 percent by 2005, the Administration has failed to provide the
resources to the CDC and community-based organizations to achieve such an
important and necessary goal.
In the past year, the Bush Administration
has actively undermined effective HIV prevention programs. The Administration failed to endorse and
develop prevention policies and programs based upon the findings of "The
Surgeon General's Call to Action to Promote Sexual Health and Responsible
Sexual Behavior." In addition, the
Administration has attacked comprehensive, locally tailored HIV prevention
programs. The ultimate goals and scope of
an Administration-driven review of all HIV/AIDS programs, including prevention
programs, remains unclear and undefined.
The public health community shares grave
concern over this Administration's strong and vocal support for abstinence-only
and abstinence-until-marriage programs to the exclusion of comprehensive
prevention messages that include a discussion about and access to
contraceptives.
This Administration continues to support a
federal ban on harm reduction programs, including needle exchange programs that
have been affirmed by the Institute of Medicine. President Bush has maintained the Clinton Administration
directive prohibiting the use of federal funds to support needle exchange
programs and has endorsed a similar ban on the use of
District of Columbia funds in the
Administration's FY 2002 and FY 2003 budgets.
Ř Research
The National Institutes of Health (NIH) is
the backbone of the nation’s AIDS research initiative and President Bush’s
support for doubling of the entire NIH budget is critical and supported.
However, allocation of these funds must be based on scientific opportunity. The
consolidated AIDS research budget, which is required by law and provides for a
comprehensive AIDS research portfolio, must also be included in the final NIH
budget.
While the AIDS community recognizes the
president's efforts in coordinating the federal government's AIDS vaccine
research, it stands concerned that the transfer of the Department of Defense's
(DOD) entire HIV research program to the NIH may compromise the flexibility and
uniqueness of the DOD program.
Ř Global Programs
The
Administration’s leadership on global AIDS issues is has
been mixed. Secretary of State Colin Powell deserves great credit for making
global AIDS issues a priority and delivering important public statements about
the pandemic’s devastating consequences and the need to speak frankly about
condom use. We applaud the Administration for recognizing the importance of
HIV/AIDS at USAID by elevating the HIV/AIDS division to an office and
increasing its budget and staff resources.
The Administration’s role in ensuring that non-governmental
organizations (NGOs) are funded by the global fund is also noteworthy.
In contrast, some
in the Administration have questioned the ability to provide treatment in the
developing world and have attempted to limit developing countries’ ability to
manufacture their own versions of HIV treatments or import cheaper generic
versions. by By re-instating a policy that
prohibits NGOs that provide comprehensive family planning services from
receiving U.S. funds, President Bush weakens HIV prevention efforts abroad.
Leadership
After a strong public outcry, the Administration decided to keep the
Office of National AIDS Policy (ONAP) and subsequently named Scott Evertz, an
openly gay man, to serve as ONAP’s director.
While Mr. Evertz has been visible in the HIV/AIDS community, it remains
unclear how much influence and authority ONAP has on the development and
support of sound HIV/AIDS policies within this Administration and the White
House. We also stand concerned that the
community has not been given the opportunity to have an open dialogue with key
policy staff at the White House Office of Domestic Policy and the Office of
Management and Budget to discuss the Administration’s comprehensive HIV and
AIDS strategy, or lack thereof.
The mission and clear commitment of the White House Task Force on
HIV/AIDS, jointly chaired by Secretaries Powell and Thompson, to develop a
coordinated and comprehensive strategy for addressing HIV/AIDS in the United
States and internationally remain unclear and undefined. While the Task Force provides a promising
forum for the formation of the Bush Administration’s HIV/AIDS policies across
agencies, it has truly been underutilized to date.
We stand concerned that a number of key appointments important to
HIV/AIDS programs have not been made by the Administration including the
Surgeon General, the Director of the CDC’s National Center for HIV, STD and TB
Prevention, the Director of the CDC’s Division of HIV/AIDS Prevention, and the
Director of the Office of HIV and AIDS Policy within HHS.
While the HIV/AIDS community commends the Administration for retaining
the Presidential Advisory Council on HIV/AIDS (PACHA), we are concerned that a
number of individuals appointed to the council have public track records of
supporting HIV/AIDS policies that are at odds with science, public health
experts, people living with HIV/AIDS and community-based providers and have
made statements viewed as homophobic and discrediting sound, proven HIV
prevention strategies.